OUR ROLE & IMPACT

York Area Down Syndrome Association (YADSA) is a non-profit organization that provides support to families with children and adults with disabilities with a primary focus on individuals with Down syndrome. YADSA’s goal is to bring an understanding of Down syndrome to the community and professionals. YADSA also provides support to individuals with Down syndrome and their families.

Support Families

You can count on YADSA to be supportive, informative and there for your family. We offer many activities and have monthly business and support meetings. YADSA is a great opportunity for families to share and talk to each other. Please feel free to reach out to YADSA at anytime via email at yadsa@gmail.com

Understand Down Syndrome

Encourage professionals and the community to recognize the value of people with Down syndrome through medical outreach. We work together with local hospitals and physician offices in the area and have a parent who serves as our Medical Outreach Coordinator. We distribute Welcome Baskets to various hospitals for new and expectant parents.

Provide Information

Provide information for parents and the community through meetings, special speakers, and educational training. We work together with many local school districts and other local organizations in the area who provide supports to individuals with Down syndrome. We have meetings where speakers, such as educators and therapist come to and share information.

Promote Independence and Inclusion

Promote independence and inclusion of people with Down syndrome. YADSA’s vision is to support families and provide them with tools and support to provide the most opportunities for their family member with Down syndrome. We do this by working with educators, medical professionals and local groups in the community.

Grants and Scholarships

We provide grants to assist families with therapy, education and medical needs. You can submit a grant application from the website. Scholarships are available to students pursuing higher education that relates to supporting individuals with disabilities.

Promote Growth and Development

Promote growth and development of individuals with Down syndrome through activities and programs. YADSA has several activities throughout the year. These activities are listed under our activities section on the website. They provide wonderful opportunities for growth, development and opportunities for friendship.

OUR TEAM

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Tiffany Schuster

President

Hi! My name is Tiffany Schuster and I am the current YADSA president! I am mom to Austin (13) and Olivia (10). I was 19 when I had Austin and we did not find out that he had Down syndrome until after delivery. We became part of YADSA when Austin was 4 because it took me a long time to accept the diagnosis. Since becoming part of YADSA I have been a board member for many years and became president last year. My goal is that we continue to promote awareness and education in our community for all people with Down syndrome. Our family loves being involved with YADSA and we hope that we continue to grow as a group and reach more families in the coming years! 

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Jen McIlwee

Vice President

Hi, my name is Jen McIlwee.  My husband, Tom, and I have three kids Caleb (10), Cameryn (8), and Cole (6).  Our youngest, Cole, was diagnosed after birth with Down syndrome.  From the time he was born he showed us everything he CAN do!  We have been blessed by his extra chromosome in so many ways.  We have learned from our YADSA family, celebrated with them and grown with them over the past 6 years and are committed to helping other families the same way.

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Lynn Burton

Treasurer

My name is Lynn Burton.  My son is Danny, who will soon be 17.  My husband Bob and I lived in Florida at the time of Danny's birth.  I had an amnio and we had plenty of time to learn about Down Syndrome prior to his arrival.  We joined a support group in South Florida and met lots of kids of all ages.  When we moved here in 2008, we joined YADSA. Coming from Florida, things were very different and we found YADSA very helpful in learning the Pennsylvania process.  This is my third year as treasurer of the group.

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Sue Hewitt

Secretary

Hi. My name is Sue Hewitt and I am currently the secretary of YADSA . My husband, Chris, and I have one son named Cooper.  Cooper is three years old and the light of our lives.   We learned of Cooper's Down syndrome while pregnant. His determination, perseverance and joy have inspired us and many others to live life to the fullest. We've been involved with YADSA since Cooper was several months old.  We cherish the friendships we've made and are very thankful for the support we've receive from other YADSA families.

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April Henry

Board Member

Hi! My name is April Henry and my husband and I have two children. Kendall (3) and Kadin (1). Kendall was diagnosed with Down syndrome shortly after birth. She has been my motivation to become part of YADSA and to help advocate for all of the children with Down syndrome and their families. Kendall is my world and I would do anything to help her have the best life possible. She is one AMAZING little girl! We became involved with YADSA shortly after Kendall was born and this is my 2nd year as a board member. We love meeting new families and cherish the friendships we have already made. I look forward to a great year with YADSA.

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Nikki Adamy

Board Member

Hello! My name is Nikki Adamy, I have two wonderful boys, Aidan age 7 and Mason age 3. I learned of Mason's Down Syndrome diagnosis while pregnant. Ever since I have been an advocate for him and all others with Down Syndrome. I try and promote awareness every chance I get, I want both of my children to live a happy, fulfilled life. Mason has taught me so much in his three years, he is my super hero! We have been involved with YADSA since Mason was born, I love meeting families and creating everlasting friendships! I always look forward to meeting new families.

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Bruce Duncan

Board Member

My name is Bruce Duncan. I am married and my wife’s name is Carol. We have 5 children. Kasey is the only one left at the house. She is 15 and goes to High School. We have been involved with YADSA for a couple of years and we enjoy the group very much. We are looking forward to seeing the group grow with more families.

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Carolyne Williams

Board Member

Hello! My name is Carolyne Williams, this is my first year as a board member. My husband, Ryan, and I have two amazing daughters, Anika (4) and Livia (2, DS). Livia was diagnosed at birth and two months later we started attending YADSA functions. YADSA has been a big support system for our family and we hope to be a part of that support to others. Looking forward to growing and promoting together with all of the YADSA family!

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Gayla Daniels

Board Member

Hi, my name is Gayla Daniels.  My husband, Chris, and I have 3 children, Travis (15), Emma (13) and Reece (10).  Emma was diagnosed at birth with Down syndrome.  We attended our first Buddy Walk in 2005 and have been very active members of YADSA ever since.  I am forever grateful for the lifelong friendships that one tiny extra chromosome has brought to my life.  I hope Emma and our family can be an inspiration for promoting awareness, acceptance and inclusion of all people with Down syndrome.   This is my 6th year serving on the Board.

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Tricia Dutterer

Medical Outreach Coordinator

My name is Tricia Dutterer. My husband, Brad, and I have 5 children. We have enjoyed being a part of YADSA since our 6 year old daughter, Kamdyn, was a baby. I served as activities coordinator for one year and for the past few years, I have served as Medical Outreach Coordinator as YADSA has expanded its outreach to medical professionals in the area. It has been exciting to watch YADSA grow and add new members over the years, and I look forward to the continued growth of the group as we all strive to make our communities a more accepting and inclusive environment for our loved ones with Down syndrome.